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News Archives 2061-2080
Number Title Post Date
2061 Nassau County Investigating Vaccines/Autism Link 29/04/2008 16:00:39
2062 One Click Stats - 30 April 2008 30/04/2008 06:32:15
2063 Leaders Against Pain Scholarship Programme 01/05/2008 09:23:31
2064 Codex - Scott C Tips From The NHF In Beijing 01/05/2008 09:29:32
2065 Eli Lily Admits Strattera Drug Causes Psychotic Reactions 01/05/2008 09:34:10
2066 FDA Culpable In Promoting Deadly Blood 01/05/2008 09:36:42
2067 Corrupt FDA Official Promotes Off-Label Psych Drugs Use 01/05/2008 09:39:42
2068 UMC Passes Global Anti-Mercury Vaccines Resolution 01/05/2008 09:42:54
2069 Merck Vaccine Plant Violates Safety Standards 01/05/2008 09:44:43
2070 Delayed CDC Toxic Report Stirs Further Controversy 02/05/2008 07:56:31
2071 MPs Referendum on ME Research 02/05/2008 07:59:45
2072 Tracking & Forcing Vaccines: Parents Want Choices 02/05/2008 08:03:50
2073 Unprecedented Adverse Child Vaccine Reports 02/05/2008 08:15:52
2074 IDSA Lyme Guidelines Seriously Flawed 02/05/2008 08:17:46
2075 Royal Society of Medicine CFS Protest Coverage 16/05/2008 11:30:16
2076 Another Kid Dies After Vaccination 16/05/2008 11:34:54
2077 4,900 USA Families Go To Vaccine Court 16/05/2008 11:43:32
2078 Labour MPs MMR Vaccine Proposal Breaches Human Rights 16/05/2008 11:45:48
2079 Expert Dr Bernadine Healy - Vaccines/Autism Link 16/05/2008 11:49:20
2080 Dr Jonathan Kerr & Post Infectious Stress Syndrome 16/05/2008 11:54:16

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MPs Referendum on ME Research
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Campaigning for Research into ME (RiME)

Below are two letters:

1.) The Referendum on ME Research which has been sent to all 646 MPs (after the Yes and No options were two boxes for MPs to tick. I was able to print it off that way but not commit a pdf version to file or cut + paste).

2.) A supporting letter. It is preferable that people write their own letters, but please use the attached if you require assistance.

Good Wishes,

Paul
rimexx@tiscali.co.uk
Campaigning for Research into Myalgic Encephalomyelitis (RiME)
www.erythos.com/RiME


MPs Referendum on ME Research

April 2008

Dear

There are an estimated 240,000 people with Myalgic Encephalomyelitis (ME) in Britain. Of these, one-quarter are severely affected, some to the degree that they are permanently bed-ridden, and cannot attend to basic needs; others, sadly, die. Apart from death and human suffering, there is also the matter of cost to the country. A study by Action for ME May 2006 estimated the cost at 6.4 billion per annum.

The World Health Organisation lists ME as a neurological illness (ICD 10 G93.3) and the following research shows abnormalities in groups of ME patients:

Muscle: Altered metabolism - Fulle et al., 2003; Vecchiet et al., 2003. Enteroviral sequences in muscle - Lane et al., 2003; Douche-Aourik et al., 2003. Abnormal response to exercise - Paul et al., 1999; McCully et al., 2004.

Brain: Metabolic abnormalities - Puri et al., 2002; Chaudhuri et al., 2003.

Vascular: Endothelial dysregulation - Spence et al., 2000; Khan et al., 2004. Altered brain perfusion - Costa et al., 1995; Tirelli et al., 1998. Orthostatic hypotension - Naschitz et al., 2002; Stewart et al., 20003.

Biochemical: Oxidative stress - Kennedy et al., 2003; Vecchiet et al., 2003. Dysregulation of anti-viral pathways - De Meirleir et al., 2000; Tiev et al., 2003.

Gene Research: The ongoing research of Dr Jonathan Kerr has found (1) that there are seven subtypes (2) evidence of different clinical symptoms and severity for each subtype.

Please note that this research is either being carried out abroad or funded privately in the UK.

We are canvassing MPs' opinions on the subject and would be grateful if you would fill out the questionnaire below.

Yours Sincerely,

************************

MPs Referendum on Research into Myalgic Encephalomyelitis (ME)

Yes, I think the British Government should be funding research into the underlying physical causes and disease process of ME.

No, I don't think the British Government should be funding research into the underlying physical causes and disease process of ME.

Signature

************************

Printed

************************

Date

************************

Please return to RiME,
10 Carters Hill Close,
Mottingham,
London, SE9 4RS


by May 31 2008

************************

House of Commons
London
SW1A OAA

Dear


MPs Referendum on ME Research


If you haven't by now, you should shortly receive from RiME (Campaigning for Research into ME), the above document asking whether or not you think the Government should be funding research into the underlying physical causes and disease process of the neurological illness Myalgic Encephalomyelitis (ME). I urge you to tick the YES box.

In January 2002 the Chief Medical Officer's Report on CFS/ME recommended research into all aspects of CFS/ME, p.69:

6.5 Research

A programme of research on all aspects of CFS/ME is required.

Government investment in research on CFS/ME should encompass health-services research, epidemiology, behavioural and social science, clinical research and trials, and basic science.

In particular, research is ungently needed to:

Elucidate the aetiology and pathogenesis of CFS/ME....

Six years on the Government, to my knowledge, has not invested a penny in biomedical ME Research and I find this totally unacceptable.

ME patients (and their relatives) have paid billions into the Treasury coffers over the years. I wonder if you can understand why the former are desperately disappointed that the Government has not invested part of this money in biomedical research so they have the chance to recover and take up/resume a useful position in society?

Whichever choice you make, I ask you not to simply forward this letter to the Health Department. When this course has been taken, in the past, they have merely replied with the repetition of a statement which does not address the need for biomedical research but details how the Government is putting token amounts of money into psychiatric / psychological models of treatment, which have no scientific justification. I would prefer not to see another of these unhelpful responses.

I look forward to hearing from you.

Yours Sincerely,
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