CC Authors & USA ME/CFS experts/contacts (Master List) From LK Woodruff, Co-Cure 3/29/2005 Dear All: I worked on updating my Master List (below) of the CC authors, as well as the current USA ME/CFS experts/contacts this weekend, with assistance from Ray (a very helpful guy:) Now I would appreciate it you all would quickly review the list and point out any errors or omissions to me. I am under a personal deadline here.... Thanks very much, LaVonne lkw777@chater.net ~~~ Authors of the 2003 ME/CFS Canadian Criteria: 1. Dr. Bruce M. Carruthers, lead author of the consensus document; co-author of the draft of the original version of the ME/CFS clinical definition, diagnostic and treatment protocols document; internal medicine. Canada. 2. Dr. Anil Kumar Jain, co-author of the draft the original version of the ME/CFS consensus document, affiliate of Ottawa Hospital, Ontario, Canada. 3. Dr. Kenny L. De Meirleir, Professor Physiology and Medicine, Vrije Universiteit Brussel, Brussels, Belgium; ME/CFS researcher and clinician; organizer of the World Congress on Chronic Fatigue Syndrome and Related Disorders; a board member of the American Association for Chronic Fatigue Syndrome; and co-editor of Chronic Fatigue Syndrome: Critical Reviews and Clinical Advances (Haworth) 4. Dr. Daniel L. Peterson, affiliate of the Sierra Internal Medicine Associates in Incline Village, Nevada, USA; ME/CFS researcher and clinician; a board member of the American Association for Chronic Fatigue Syndrome; and member of the International Chronic Fatigue Syndrome Study Group 5. Dr. Nancy G. Klimas, Clinical Professor of Medicine in Microbiology/Immunology/Allergy and Psychology, University of Miami School of Medicine, USA; ME/CFS researcher and clinician; now president of the American Association for Chronic Fatigue Syndrome; and member of the federal CFS Coordinating Committee 1200 NW 16 St. Miami FL 33136 USA Email: n.klimas@miami.edu 6. Dr. A. Martin Lerner, staff physician at William Beaumont Hospital in Royal Oak, Michigan, USA; Clinical professor and former chief of the Division of Infectious Diseases at Wayne State University's School of Medicine; and ME/CFS researcher and clinician 7. Dr. Alison C. Bested, haematological pathologist; former head of the Division of Haematology and Immunology at the Toronto East General and Orthopaedic Hospital; affiliate of the Environmental Health Clinic and Sunnybrrok & Women's College Health Sciences Centre, Toronto, Ontario, Canada; ME/CFS researcher and clinician 8. Dr. Pierre Flor-Henry, Clinical Professor of Psychiatry, University of Alberta; Clinical Director of General Psychiatry and Director of the Clinical Diagnostic and Research Centre, both based at Alberta Hospital in Edmonton, Alberta, Canada; ME/CFS brain researcher 9. Dr. Pradip Joshi, internal medicine, Clinical Associate Professor of Medicine at Memorial University of Newfoundland in St. John's, Canada 10. Dr. A. C. Peter Powles, Professor Emeritus, Faculty of Health Science, McMasters University, Hamilton; Professor, Faculty of Medicine, University of Toronto; Chief of Medicine and Sleep Disorders Consultant, St. Joseph's Health Centre, Toronto; Sleep Disorder Consultant at the Sleep Disorder Clinic at St. Joseph's Healthcare, Hamilton, and Central West Sleep Affiliation, Paris, Ontario, Canada. 11. Dr. Jeffrey A. Sherkey, family medicine, affiliate of the University Health Network, Toronto, Ontario, Canada; and diagnosed with chronic fatigue syndrome (CFS) nearly 10 years ago 2005 NOTE: Dr. Jeffrey A. Sherkey has since passed away. 12. Marjorie I. van de Sande, Consensus Coordinator; and Director of Education for the National ME/FM Action Network, Canada This definition was hosted and coordinated by the National ME/FM Action Network of Canada, led by Lydia Nielson. The M.E. Society would like to thank the Canadian group for the many years of work that went into this important project. ---------------------------------------------------------------------------- Current USA Government Contacts: Chronic Fatigue Syndrome Advisory Committee (CFSAC) Office of Public Health and Science U.S. Department of Health and Human Services 200 Independence Avenue, S.W. Washington, D.C. 20201 202-690-7694 (phone) 202-690-6960 (fax) cfsac@osophs.dhhs.gov (e-mail) Dr. David Bell, MD. F.A.A.P. Chair Phone: 585-765-2060 Fax: 585-765-2067 Internet: http://www.davidsbell.com/ Email: dbell005@rochester.rr.com Location: 77 South Main St PO Box 495 Lyndonville NY 14098 _____________________________________________________________ Department of Health and Human Services (HHS) Telephone: 202-619-0257 Toll Free: 1-877-696-6775 200 Independence Avenue, S.W. Washington, D.C. 20201 Mike Leavitt Secretary of Health and Human Services Phone....... 202-690-7000 Fax............ 202-690-7203 Email: _________________ Location.... 200 Independence Ave., S.W., Room 615-F Washington, DC 20201 Mary Kay Mantho Senior Advisor Phone....... 202-690-7000 Fax............ 202-690-7203 Email....... MaryKay.Mantho@hhs.gov Location.... 200 Independence Ave., S.W., Room 615-F Washington, DC 20201 Mathew McManus Special Assistant Phone....... 202-690-7000 Fax............ 202-690-7203 Email....... Matthew.McManus@hhs.gov Location....: 200 Independence Ave., S.W., Room 615-F Washington, DC 20201 Surgeon General Richard Carmona, M.D. Acting Assistant Secretary for Health Phone....... 202-690-7694 Fax............ 202-690-7425 Email: _____________________ Location..: 200 Independence Ave., S.W., Room 716-G Washington, DC 20201 Cristina Beato, M.D Principal Deputy Assistant Secretary for Health. Phone.......: 202-690-7694 Fax............: 202-690-7425 Email.......: cbeato@osophs.dhhs.gov Location...: 200 Independence Ave., S.W., Room 716-G Washington, DC 20201 _____________________________________________________________ NIH - National Institutes of Health NIAIA - National Institute of Allergy and Infectious Diseases Phone: 301-496-5717 Fax: 301-402-0120 Internet: http://www.niaid.nih.gov/ 9000 Rockville Pike Building 31A Bethesda, MD 20892 Dr. Elias A. Zerhouni MD Director Internet: http://www.nih.gov/about/director Phone......: 301-496-2433 Fax........: 301-402-2700 Email.....: ZerhounE@mail.nih.gov Location...: 1 Center Drive, MSC 0148 (Room 126) Bethesda, MD 20892-0148 Vivian Pinn MD Associate Director for Research on Women's Health Phone......: 301-402-1770 Fax........: 301-402-1798 Email.....: PinnV@mail.nih.gov Location...: 1 Center Drive, MSC 0161 (Room 201) Bethesda, MD 20892-0161 Eleanor Hanna DHHS/NIH/OD Special Assistant to Director DBE NIAAA Phone 301-435-1573 Fax 301-402-1798 Email eleanor.hanna@nih.hhs.gov Location: NIH 1 Center Drive Bethesda, MD 20892 _____________________________________________________________ CDC(Centers for Disease Control) Centers for Disease Control. Tel: (404)639-3534 Tel: (800)311-3435 Internet: http://www.cdc.gov/ Email: http://www.cdc.gov/netinfo.htm 1600 Clifton Rd. Atlanta, GA 30333 USA Julie Louise Gerberding, MD Director Phone......: 404-639-7000 Fax........: 404-639-7111 Email.....: jyg2@cdc.gov Location...: Atlanta GA 30333 Viral Exanthems and Herpesvirus Branch, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA. Toni Whistler: taw6@cdc.gov James FJones: jaj9@cdc.gov Elizabeth R Unger: eru0@cdc.gov Suzanne D Vernon: sdv2@cdc.gov *Gene assays _____________________________________________________________ Private Sector: Jason Leonard, Ph.D. DePaul University Center for Community Research 990 W. Fullerton Ave. Chicago, IL 60614-3504 Internet: http://condor.depaul.edu/~ljason/cfs/ Email: ljason@depaul.edu ~~~ Anthony L Komaroff, MD Professor of Medicine Harvard Medical School 10 Shattuck St, Suite 602 Boston, MA 02115 ~~~ Peter Rowe Johns Hopkins Hospital Baltimore, MD _______ Phone: _____________ (A pediatrician. Widely known as an expert in Neurally Mediated Hypotension and Chronic Fatigue Syndrome in children and adolescents.) ~~~ Roberto Patarca,MD, PhD 16445 Collins Ave. #328 Sunny Isles Beach FL 33160 USA ~~~ Nelson Gantz, MD, F.A.C.P. Chief of Infectious Diseases Boulder Community Hospital, Beacon Clinic 1155 Alpine Ave., Suite 190 Boulder CO 80304 ~~~ Kenneth J. Friedman, PhD Associate Professor, Department of Pharmacology and Physiology New Jersey Medical School 185 South Orange Ave Newark NJ 07103 ~~~ Charles W. Lapp, MD Physician and Medical Director Hunter-Hopkins Center 10344 Park Road Suite 300 Charlotte NC 28210 ~~~ Benjamin Natelson Dr. Peckerman J. DeLuca Email: Jdeluca@kmrrec.org Dept of Physical Medicine and Rehabilitation New Jersey School of Medicine and Dentistry Internet: http://www.umdnj.edu/cfsweb/CFS/cfshome.html Newark, New Jersey _____ ~~~ Paul Cheney N Carolina Email: pcheney@fnmedcenter.com *No longer practicing, due to recent heart transplant